February 19, 2018
‘Unrest’ — We Now Have a Copy in Our Library!
We now have a copy of Jennifer Brea’s award-winning DVD Unrest in the Group Library. Click here to go to our Library page.
November 11, 2017
Nicky’s final mile!
We will be meeting Nicky at the end of her London Loop Walk in aid of The Richmond and Kingston ME Group and The ME Trust; and having a drink at Carluccios at Charter Quay, Kingston Upon Thames, Surrey KT1 1HT .
Her eta is obviously a bit unpredictable but we think she will finish at roughly 4pm.
There is still time to help! Please click here if you would like to donate.
November 04, 2017
November 2017: R&K ME Group AGM
Our Annual General Meeting for this year is being held on Saturday, 4 November, starting at 2.30pm.
Our invited guest speaker Hannah Clifton of the ME Trust, wanted to be speaking on the progress that her organisation has made over the last year. Sadly, she isnt well enough to make it, but sends an update through our Committee member, Nicky. Hannah hopes to see us all soon, and we wish her to get well as soon as possible.
The venue is Stanley Primary School, Strathmore Road, Teddington RW11 8UH.
Refreshments will be available after proceedings.
November 01, 2017
‘Unrest’ is now Worldwide!
Twenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that leaves her so ill she becomes bedbound, often in excruciating pain, and looking for answers. Disbelieved by doctors and determined to live, she turns her camera on herself and her community, a hidden world of millions confined to their homes and bedrooms by Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome Unrest is, at its core, a love story. How Jen and her new husband forge their relationship while dealing with her mysterious illness is at once heartbreaking, inspiring and funny.
Click here to read more, view a trailer, or buy the movie on any platform.
September 19, 2017
Breaking News: NICE decides to Fully Update its guideline on ME/CFS!
NICE have this morning announced they will now commence a FULL REVIEW of the guideline for ME/CFS, effectively overturning previous expert advice not to update it.
The following has been taken from the NICE website, and was shared across social media:
Sir Andrew Dillon, NICE chief executive, said:
“The strong message from stakeholders was that the continuing debate about the causes of this condition and the best approach to treatment argued for a review of the current guideline.”
“We will now recruit a guideline committee which will include people with the condition and their carers, the healthcare professionals who treat them and the organisations which commission that treatment. As with all the guidance we produce, we will also ensure that stakeholders have the opportunity to provide evidence and insights throughout the development of the guideline.”