National ME Campaigning Organisations

Some national Campaigning organisations (including those campaigning for funding biomedical research).

The ME Association

The ME Association provides information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome), their families and carers. They also fund and support research, and offer education and training. ME Connect: 0844 576 5326, open 10–12am, 2–4 and 7–9pm seven days a week.

Action for ME

Action for ME is the UK’s leading charity dedicated to improving the lives of people with ME. They have been at the forefront of the campaign for more research, better treatments and services since 1987, and they provide information and support to people affected by ME. Welfare Rights line: 0845 122 8648 (Monday to Thursday, various times) and general enquiries: 0845 123 2380, 9am-5pm, Monday to Friday.

The 25% ME Group

Approximately 200,000 people in the UK suffer from ME. Some do recover. However, approximately 25 per cent of sufferers remain long-term ill and severely disabled by it. Many are left isolated, housebound or even bedbound. ME affects people from all walks of life, all age groups and can strike when you are least expecting it. The 25% ME Group exists to support all who have the severe form of ME — including the housebound, bedbound and wheelchair users — and their carers. Telephone: 01292 318611.