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Pre-Diagnosis Useful Resources

Information about ME/CFS & managing symptoms

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Living with ME and Chronic Fatigue Syndrome 

Dr Gerard Coakley and Beverley Knops.

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An evidence-based guide to ME/CFS, practical information and advice on a range of topics.

Useful Organisations
Mindfulness

Useful organisations 

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Action for ME 

Information and support for patients and carers.​​

ME Association 

Website includes free downloadable leaflets on a wide range of topics.

Richmond, Kingston & West London ME Group 

Run from SW & West London, members are welcome pre-diagnosis and wherever they live. A volunteer-run peer-support group with a range of online and face-to-face meet-ups and activities.

Mindfulness and Relaxation

Hillingdon Wellbeing Centre YouTube Channel

  • Mindfulness and relaxation tracks​

Mindfulness and Meditation Apps:

  • Headspace

  • Insight Timer

  • Calm – Meditate, Sleep and Relax

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Mindfulness for health: a practical guide to relieving pain, reducing stress and restoring wellbeing

Vidyamala Burch and Danny Penman

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Introduction to using mindfulness to manage chronic health conditions, particularly useful for managing chronic pain.

Treatment & Research

Treatment guidelines for ME/CFS and relevant research​

 

NICE guidelines for ME/CFS

Tells you what you can expect from the NHS.

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ME Research UK

Commissions and funds high-quality scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS.​

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