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Pre-Diagnosis Useful Resources

Information about ME/CFS & managing symptoms

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Living with ME and Chronic Fatigue Syndrome 

Dr Gerard Coakley and Beverley Knops.

An evidence-based guide to ME/CFS, practical information and advice on a range of topics.

Useful Organisations
Mindfulness

Useful organisations 

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Action for ME 

Information and support for patients and carers.​​

ME Association 

Website includes free downloadable leaflets on a wide range of topics.

Richmond, Kingston & West London ME Group 

Run from SW & West London, members are welcome pre-diagnosis and wherever they live. A volunteer-run peer-support group with a range of online and face-to-face meet-ups and activities.

Mindfulness and Relaxation

Hillingdon Wellbeing Centre YouTube Channel

  • Mindfulness and relaxation tracks​

Mindfulness and Meditation Apps:

  • Headspace

  • Insight Timer

  • Calm – Meditate, Sleep and Relax

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Mindfulness for health: a practical guide to relieving pain, reducing stress and restoring wellbeing

Vidyamala Burch and Danny Penman

Introduction to using mindfulness to manage chronic health conditions, particularly useful for managing chronic pain.

Treatment & Research

Treatment guidelines for ME/CFS and relevant research

 

NICE guidelines for ME/CFS

Tells you what you can expect from the NHS.

ME Research UK

Commissions and funds high-quality scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS.

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